Title page for ETD etd-11062012-114031


Document Type Master's Dissertation
Author Mothiba, Makopano Sara
URN etd-11062012-114031
Document Title The experiences of caregives caring for children diagnosed with acute leukemia
Degree MSW
Department Social Work and Criminology
Supervisor
Advisor Name Title
Dr J Sekudu Supervisor
Keywords
  • leukemia
  • acute
  • experiences
  • acute lymphocytic leukemia
  • acute myeloid leukemia
  • treatment
  • social worker
  • caregiver
  • hospital
  • family
Date 2012-04-17
Availability restricted
Abstract
Being informed that your child has a form of childhood cancer such as acute leukemia can be devastating for any primary caregiver. The sudden changes that occur affect the receiver of this bad news to the extent that their world becomes focused on the sick child at the expense of the other family members.

This study originated from the researcherís need to gain insight into the experiences of caregivers looking after children diagnosed with acute leukemia. The caregiver could be the legal guardian of the child, the biological mother or the childís grandmother. The aim of the study was to explore the caregiversí daily experiences while they look after these sick children. The objectives also involved providing a broad overview of literature on acute leukemia as a childhood condition, exploring the experiences of caregivers for children diagnosed with acute leukemia and drawing conclusions and recommendations for improved social work intervention specifically for these caregivers.

To explore the experiences of caregivers, the researcher conducted a phenomenological study as part of the qualitative research approach. The participants in the study were recruited by means of availability sampling when they brought their children for treatment. The data was collected by means of in-depth interviews in which ten (10) caregivers shared their experiences. The researcher was able to gain insight into the experiences of the caregivers while they were caring for the patients diagnosed with acute leukemia.

The findings revealed that, while some of the participants had a good support system, others had far less support. Consequently they yearned for the support and physical presence of their family. The researcher found that the participants lived far away from the hospital, which hindered the family from making regular visits to the hospital. This disrupted the family system, because the focus fell mostly on the sick child. There were also major financial implications in caring for a sick child, and the participantsí children are all recipients of a welfare social relief grant.

Copyright © 2011, University of Pretoria. All rights reserved. The copyright in this work vests in the University of Pretoria. No part of this work may be reproduced or transmitted in any form or by any means, without the prior written permission of the University of Pretoria

Please cite as follows:

Mothiba, MS 2011, The experiences of caregives caring for children diagnosed with acute leukemia, MSW dissertation, University of Pretoria, Pretoria, viewed yymmdd < http://upetd.up.ac.za/thesis/available/etd-11062012-114031 / >

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