Title page for ETD etd-09252009-011209

Document Type Doctoral Thesis
Author Mailula, Gaefele Simon
Email smailula@webmail.co.za
URN etd-09252009-011209
Document Title Listening to the unheard stories of children affected by HIV and AIDS in a bereavement process in the Mamelodi township of Tshwane : a narrative research study
Degree PhD
Department Practical Theology
Advisor Name Title
Prof J C Muller Supervisor
  • narrative approach
  • post-foundational practical theology
  • social constructionism
  • Godís presence
  • post-modernism
  • the Church
  • bereavement process
  • children affected by HIV/AIDS
  • PLWA
  • people living with AIDS
  • economic aspects
  • co-researchers
  • psycho-social and emotional themes
Date 2009-09-01
Availability unrestricted
Children living in the Mamelodi Township of Tshwane and affected by HIV and AIDS have their own unique challenges they face everyday. These challenges include the poverty context of the township and the stigmatising effect of the community towards these children, compounded by very difficult extended family circumstances and also the struggle with their own identity crisis in the specific developmental phases in which these children find themselves.

The focus of this study was to listen to the stories of children affected by HIV and AIDS in the midst of the bereavement process. The emotional responses of children affected by HIV and AIDS within child-headed households experiencing difficulties were identified and explored.

A narrative research design was used to capture a chapter in the life stories of three (3) children affected by HIV and AIDS as well as a caregiver who died of AIDS before I completed this study. Data was collected by means of individual interviews, group sessions, and letters which the children wrote to God and the field notes in the form of journal entries written by the researcher, as well as individual feedback and collaboration sessions with the specific caregivers. Data was analysed by means of several phases of theme analysis after which - through a final analysis - psycho-social, emotional and economic response themes were identified.

This study found that children affected by HIV/AIDS experience complex emotions in response to their plight. The strongest emotional response themes that emerged, which were reported by all the children were frustration, happiness and love. The more negative emotional responses were mentioned in relation to the feeling that they were being stigmatised in school as well as in their community.

© 2009, University of Pretoria. All rights reserved. The copyright in this work vests in the University of Pretoria. No part of this work may be reproduced or transmitted in any form or by any means, without the prior written permission of the University of Pretoria.

Please cite as follows:

Mailula, GS 2009, Listening to the unheard stories of children affected by HIV and AIDS in a bereavement process in the Mamelodi township of Tshwane : a narrative research study, PhD thesis, University of Pretoria, Pretoria, viewed yymmdd < http://upetd.up.ac.za/thesis/available/etd-09252009-011209/ >


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